ON
THE WEB
WITH
LINK EXCHANGE
SUPPORT
CdLS
INFORMATION
FROM BIRTH
TO MY PRESENT AGE
36 YEARS
More Information Links
Personal Experiences
experiences with mum's help writing my history stories from birth,photos from 3 mths to my present age 36.
It helps with supportive understanding, education, mutual support and awareness about CdLS in Australian communities, and providing our information for the people interested to learn of the syndrome and our personal experiences..
Here you will find: about my birth and ICU, tests, examinations, x-rays, photos and diagnosis, GP doctors,
pediatricians, genetic specialists, healthy and fit, growth and progress, raising me, behaviour, special school years, meeting other families, learning about the syndrome, intellectual disability adult programs,and my
community accomodation living, autistic tendencies, my family pages, personal web sites, initiating
Australia on the web with link exchange support, family invitations to join and welcome, disability links helpful for families and lots more to browse. It's a good idea contacting Mum if you want more specific
information about me she will be happy to help.
Syndrome?
www.geocities.com/kangagurl_ 63
kangagurl_63@yahoo.com.au
Yahoo Messenger: kangagurl_63
Our Bitter Enemies 3 for more details!!!
When these malicious
attacks cease this web site will
return to normal and we
apologize very much to
our genuine readers once
again. Keep checking back to read the 3 pages listed on
the left under Stephen's stories. You will find some pages to enjoy reading of course!! :-) Action should be taken for the serious attacks and directories' entries against this web site's permission.
Assisting CdLS Awareness and Support
To welcome families who would like to share their child's personal
experiences with us. It helps families, carers, teachers, doctors and
people interested to learn expanding their knowledge, understanding
and education of the syndrome offering individual information. This
is open to any family to join link exchange forming greater awareness
and richer support of a "little known" very rare genetic condition.
The most outstanding feature of CdLS is the facial features factor, while each child developes individually, can share similarities along
the way. Stephen invites generous families to join him giving a better
understanding providing mutual support, involvement, importance of our"special love"in all our lives we share in our hearts so dearly.
If you have a Yahoo ID and want to join - Great! Grab yourself a web
site at Geocities it's free and quite easy to follow, and if you stumble on something just send an email we'll try and help you ;-) All you need do is sign in with your Yahoo ID simple as that, and you automatically sign out with Yahoo when done.
LINK EXCHANGE SUPPORT
Families visiting here with web sites or contemplating one of your own
please join to discuss a permanent Logo, the one used presently is temporary to get started, it is a joint decision between families. The link exchange method is done via e-mail sending your site address a certainty it is not a hoax. Anytime you wish not to continue for your site to be listed, just send an e-mail for it not be included, and you will be respected for your decision immediately.
NOTICE FOR AUSTRALIAN FAMILIES: Please stay tunned. We hope families will be able to join us in the near future, as soon as this web site is free of all un-authorized Directories' entries, and the free right to be on the Web. We are seeing this through all on our own as Australian families' rights to share together as well as not being wanted on the Web!
A WHOLE NEW WORLD FOR US
Since beginning this web site early July '06 has opened up a whole new
world for us. Our main purpose and utmost importance was to step forward for Cornelia de Lange Syndrome providing necessary support information on the community level for our country especially. As parents we are very happy to help the cause. In Stephen's (now 37 years)has touched many hearts with his unique condition (syndrome) and his personality. There is much to be learned and when families join together it forms stronger knowledge and richer education we all share together.
Many thanks to family, friends and visitors for all the support shown, a tremendous help as I ventured into this kind of supportive help (world)
feeling all sorts of emotions knowing the efforts have been truely appreciated by the lovely comments received. We are indeed helping a worthy cause a delight to share Stephen's individual information. If some particular thing helps another family it has all been well worthwhile, contributing to CdLS for other families and interested persons in our syndrome. We will be sharing as much of Stephen's life
as possible for the benefits of other families in particular, to hear all about another baby born with CdLS.
LINKING TO THIS WEB SITE IS NOT PERMITTED
Entries into 40 plus Directories has been done by our web site theft by:
www.geocities.com/staciep333/beccasballroom/ in the name of:
www.geocities.com/jessicasplace/
Linking to our web site needs our authority by email and who you are
giving your site URL!! This web site is copyright. What has occured to Stephen's site these are precautions we must take. Families can be advised further when joining in the near future.
Thank You for your message :-)
Those few sites are certainly very different in latter times.
PLEASE NOTE!
There will be no updates on Stephen's information due to the theft of this site for 40 plus Directory inclusions in the name of:::::
staciep333/heartland/meadows/8874 - heartland/meadows/2564
We sincerely apologize to our genuine CdLS readers for these continual vicious personal attacks by the moms' gang U.S.A.
ALL ENTRIES MUST BE REMOVED!!! A WEEKS NOTICE HAS BEEN GIVEN FOR ALL REMOVALS.
staciep333 remove Stephen from all your listings at once!!
Connections
benefits families and interested people welcome and learn from your own experiences. A precious
gift of giving between families on the Web.
Please email us to join link exchange!!!
pacifier aid to strengthen my sucking-perfect understanding-my friends-family-kindness-trusting people-
new doctor-regular physical checks-intellectual disability-bunions-orthopaedic footwear-love reading-home
and adult support programs-community activities- born into community awareness after leaving hospital-
respond to verbal communication-meeting other families-out and about lifestyle-express my likes and dislikes-needs-affection-music-healthy meals-shopping-my varied groups' gatherings weekends-holidays-
beach-country-train-day trips 1:1 and as a group-more improved expressive language skills-programs to further my independence- adult interaction
our son's valuable CdLS information on the family level of experiences, shared amongst families in the communities - come join us on the web!! This is a new introduction for Australia on the web, providing comfort, a place for families to come not feeling alone, to be given the opportunity to share their own
individual stories together, because it helps with more understanding when united offering so much more
education from the family aspects of raising our special baby.
stats were tampered with also by the Geocities.com CdLS families. We can fully inform you!!
